To evaluate the psychometric properties of the Quality of Life Inventory -Disability (QI-Disability) for individuals with Dravet syndrome (DS) or Len…
CDKL5 deficiency disorder (CDD) is a rare developmental and epileptic encephalopathy (DEE) associated with multiple impairments and comorbidities. Ou…
Despite growing evidence that parental work–family conflict (WFC) affects children’s emotional well-being, little is known about the multiple pathway…
The primary objective was to determine whether a behaviour change intervention delivered to hospital staff would (1) improve the proportion of Aborig…
Indigenous peoples globally have incurred significant harm resulting from colonisation and the forced removal of children from their families, cultur…
Aim: To describe the real-world effects of trofinetide in individuals with Rett syndrome (RTT) using the 18-month follow-up analysis of the LOTUS stu…
CDKL5 deficiency disorder is a rare and severe developmental and epileptic encephalopathy that has profound effects on communication. It is essential…
Attention-Deficit/Hyperactivity Disorder (ADHD)/Hyperkinetic Disorder (HD) is linked to increased risks of morbidity, comorbidity and mortality, with…
People with intellectual disability experience a greater risk of maltreatment than people without intellectual disability. Maltreatment by family mem…