Down syndrome or Rett syndrome in the family: Parental reflections on sibling experience
Siblings of children with intellectual disability have unique family experiences, varying by type of disability.
Measurement and Resources
We aim to ensure that high quality outcome measures are available to evaluate treatments and services for children with disability rigorously. We aim…
Movement Disorders
Our vision is to increase awareness and improve outcomes for children with movement disorders and other neurodevelopmental conditions impacting on mo…
Rare Diseases
While individual diseases are rare, as a group, rare diseases are common. Recent estimates suggest that between 3% and 6% of the world’s population a…
Rural Sibling Study
We want to hear from siblings living outside of Australian cities!